| Listen to our audio presentation: The Historical Bond Between Humans and Dogs |
Heralding a new dawn for hemophiliacs around the globe, World Hemophilia Day on the 17th of April 2024 is more than just a date on the calendar. It’s a beacon of hope, a call to action, and an acknowledgment of the courage it takes to live with this chronic condition.
Hemophilia is a genetic disorder that prevents the blood from clotting, a process essential to healing wounds. The absence of clotting means even the minor injuries can cause severe bleeding and lead to other complications. World Hemophilia Day 2024 aims to raise awareness about this rare but life-altering disease and encourage research to improve treatments and work towards a potential cure.
The event, organized annually by the World Federation of Hemophilia (WFH), does not only serve as a platform to inform and educate. It fosters global solidarity, highlighting the fact that hemophilia is a global issue that requires a global response.
The theme for World Hemophilia Day 2024 is “Equitable access for all: recognizing all bleeding disorders”. WFH aims to highlight the role of community support in managing this disorder, emphasizing the importance of unity in the face of adversity. ‘Unite’ is not just a term but an exhortation to individuals, communities, and governments worldwide towards cohesive action.
Endorsed by global health organizations like the World Health Organisation (WHO) and the Center for Disease Control (CDC), World Hemophilia Day 2024 promises to be a milestone in the ongoing research, awareness campaigns, and advocacy programs for hemophilia and similar genetic disorders.
Information Box:
Hemophilia in Numbers:
– Over 400,000 people worldwide are known to have Hemophilia.
– It primarily affects males; about 1 in 5,000 male births results in Hemophilia A.
– About 75% of people with Hemophilia have no access to treatment or diagnosis worldwide.
What to Know:
– Hemophilia is a genetic disorder.
– There is no cure yet, but it can be managed with regular infusions to replace the missing blood clotting factor.
– About 20-30% of Hemophilia B patients develop inhibitors (antibodies).
Global Impact:
– World Hemophilia Day occurred first on 17th April 1989.